Free streaming broadcast: Sat June 23rd & Sun June24th
Great news for all of us in the vitiligo community around the world: by the time next Monday (25th June – #World-Vitiligo-Day 2018) arrives, we could find ourselves a lot better informed about current and future developments in #vitiligo-research and clinical care. I say this because we all have the opportunity to stream this year’s WVD conference by visiting this page on the University of Massachusetts Vitiligo Clinic and Research Center’s website.
Entitled Children, Research, and Hope for the Future, the conference will be hosted by the Director of the Centre Dr John Harris (you may have seen my previous blog post about Dr Harris) and Valarie Molyneaux the Founder and Chief Executive Officer of VITFriends and the programme will include presentations from a diverse and impressive list of guest speakers, drawn from the worlds of dermatology, pigmentation research, psychology, modelling, broadcasting, celebrity, business and even photography.
The live stream for the conference will be available at the following times (time zone: EasternDaylight Time / UTC/GMT-4)
If you do listen in, I feel certain that World Vitiligo Day 2018 will not only find you better informed, but uplifted and encouraged too. Although we may not always be aware of the fact, there is so much to celebrate and anticipate in the areas of vitiligo research, awareness and support. And this weekend is probably the best chance to date for us to feel part of this exciting progress.
Vitiligo on TV makeover show
Earlier this month I watched Katie Piper’s Face to Face, a #TV documentary on Britain’s Channel 4 presented by a former model, in which she invited women with a variety of face-altering skin conditions to have a makeover. What made this programme so different from all the other makeover shows I have ever seen was that Katie herself has severe facial scars which she sustained several years ago when she was the victim of an acid attack. And, unbeknown to her guests, each of the make-up artists on the show shared the same facial condition as the person they were making up. The whole show was absorbing but I was, of course, particularly interested in the #vitiligo-makeover.
The big reveal
The most dramatic twist of all was "reverse big reveal” at the end of each makeover when, to the surprise of the person sitting in the make-up chair, the artist wiped off their own cosmetics to reveal that they too had the same condition. The effect of this was both moving and uplifting because it was so unexpected and, in a strange way, so intimate. This was definitely not your average makeover show (although there were some useful tips for anyone interested in cosmetics and camouflage) and it was certainly not about glamorous professionals helping to transform poor, needy victims by teaching them to hide their scars. It did show that make-up is a potentially empowering, but completely personal, choice for anyone whose face is different from the accepted norm. But, much more importantly, it showed the power of shared experience and mutual compassion between the invited guests and their make-up artists (some of whom were self-taught, rather than professionals). Seeing their reactions, I was reminded of the tremendous power of mutual support. Because, no matter how kind and well-intentioned a person may be, it takes someone who has been through a face-altering experience to truly understand how this makes a person feel.
One shared experience: two different ways of coping
The show also highlighted the different ways in which individuals cope with their skin condition. Rochelle, the guest with vitiligo, had come to terms so completely with her two-tone skin that she actually found the cosmetic transformation into airbrushed perfection rather unnerving, whereas Nancy, the artist who performed the makeover, relies on cosmetic camouflage to give her the confidence she needs each day to feel comfortable in her own skin. I found myself in awe of Rochelle's attitude but I completely related to Nancy's because my reaction to having vitiligo had always been to hide it at all costs and every time I removed my make-up and looked in the mirror it use to make me miserable. For me, the most powerful part of their interaction was seeing both of them instantly empathise with the other, whilst accepting that they each had completely different, yet equally valid, ways of coping on a daily basis.
Exposure and coverage
It is good to see vitiligo being shown and discussed in such an open and constructive way on mainstream TV. I am guessing that this will have been the first time that many viewers have ever seen or heard of vitiligo. I have always enjoyed a good play on words, so it strikes me as strangely fitting that a condition that presents each individual with a choice between exposure or (cosmetic) coverage should be in such need of both media exposure and media coverage! There is still a shockingly poor level of awareness and understanding of it, compared to other skin conditions. This widespread ignorance is one of the reasons so many people choose to cover their patches up (which, of course, helps to perpetuate that ignorance). After all, even if you are not particularly self-conscious, who wants to keep having to explain to people what the white spots are? Isn’t it just simpler to hide them and pretend they aren’t there? That’s how I used to feel before I re-gained my lost pigment and, I have to admit that it is probably how I would still feel today. It was my coping strategy then and I don’t suppose I would be much different now. But I do think that the more exposure vitiligo has in the media, the easier it will become for each person to decide for themselves, with no pressure from others, whether they want to cover up or not.
It seems to me that Katie Piper herself has developed a wonderfully positive and balanced attitude towards the role of make-up for those with skin imperfections. At the start of the show, she admits that, like anyone else, she worries about her appearance but, on the subject of make-up, she says she has come to see it as a friend she can call upon when she needs it but never be dependent on.
Having watched the show, I was prompted to find out more about its inspirational host and what impressed me the most when I read Katie's story was the fact that she has clearly emerged from her own utterly horrifying ordeal a stronger and more successful person with a heartfelt desire to use her painful experiences to help others overcome their physical, and emotional scars too.
If you did not see the show it is available to view on this link:
Why I believe this day is so important
“Happy World Vitiligo Day!” was probably not the first utterance out of your mouth when you woke up this morning. Nevertheless, today – 25 June 2016 – is #WorldVitiligoDay and, in my opinion, an important date for everyone affected by #vitiligo.
If you would like to know what this date is all about my post from this day last year is worth a read. I would, of course, especially recommend a visit to the World Vitiligo Day website, 25june.org for all the first-hand information and check out the Facebook page and @WVitiligoDay on Twitter. I have also copied the World Vitiligo Day #petition letter from that site at the bottom of this post so that you can see immediately how important this campaign really is.
Today is not like other dates in the calendar
Today is not like other, more famous dates in the calendar...
It is not a day of celebration like a birthday (although the creation of this excellent campaign five years ago is definitely worth celebrating).
It is not a day of appreciation like Mother's Day (although I think it is a fine opportunity to appreciate everyone affected by, or involved with, vitiligo and its treatment).
It is not a day of commemoration like the anniversary of a prominent historical figure (although the date of Michael Jackson's death is a poignant reminder of the fact that he suffered with the condition.)
Neither is it a day for remembering past military battles or pivotal political events (although it certainly reminds us that there is a battle in progress and a victory to be won).
My view of World Vitiligo Day
My view of World Vitiligo Day is that it is a day of hope and solidarity for the estimated 70 million people worldwide living with this skin disorder, and for their loved ones who so often share in their distress. It is a cause to rally behind and a call to action for each one of us who believe that far greater awareness and understanding of vitiligo is needed – in society at large and also in the medical and scientific community – before vitiligo sufferers everywhere receive the levels of recognition, support and therapy they deserve.
World Vitiligo Day offers us all a chance to influence the outcome of this battle in progress and to achieve our victory that much sooner. By adding more names to the petition to have this date observed every year by the United Nations we will raise awareness, improve understanding, change faulty perceptions and secure more funding for treatments far faster than we could hope to as individuals.
So I do indeed wish you a very happy 5th World Vitiligo Day. I hope that we will all celebrate, appreciate, commemorate and remember its significance. And I hope that it will inspire many more of us to action, bring us closer together, fill us with hope and provide a voice to the millions of us whose message has not yet been heard.
World Vitiligo Day petition letter
Hear us as we speak with one voice about human rights, healthcare and education. We, the undersigned, are just the few of estimated over 100 million people living, working, taking care of children across the world with this neglected disease, vitiligo.
We contribute to every single industry and culture in the world. We are the rich and the poor. We are the face of the entire all neglected disease community. You find us in schools, hospitals, on TV and movies screens, sport arenas, and churches, while many went into seclusion and voluntary isolation from society.
Although vitiligo daily has destroyed the lives of millions of individuals since recorded history, predominantly in the developing world, there is no cure in sight. But few diseases give rise to more fear and loathing than vitiligo, especially in dark-skinned people, in whom it can be strikingly prominent. And because it is not contagious or life-threatening, we often receive no support whatsoever from our national healthcare systems.
Thus, I support the initiative 25June and respectfully require the United Nations to
1. Urgently pursue multilateral efforts in vitiligo healthcare and education, and to
2. Designate June 25 as the World Vitiligo Day.
Mr. Secretary-General, please hear our voice. We know you can encourage Member States to respect our rights. Please pursue policies supportive of neglected disease collaboration, vitiligo in particular. This is central to the human rights and personal dignity of millions of women, men and children on this Earth.
Yours in health and freedom,
To find out more, or to sign the petition, please go to this page of the World Vitiligo Day site - and please send your friends and family too :).
Tell your story, make a difference
Those of us on the inside of the “vitiligo community” know only too well how profoundly the loss of normal skin colour can affect a person. We know all the ways, great and small, that the condition impacts on our daily life, on our confidence and even on our sense of self. We understand the feelings of isolation and vulnerability that come with having a highly visible difference in our appearance, especially as this difference often invites casual curiosity and rarely meets with genuine understanding or empathy. We share a sense of frustration that a disorder shared by roughly one person in every hundred around the world is still so under-publicised and poorly recognised. For this reason, I am always happy to come across serious media interest that seeks to dispel the almost universal ignorance that exists about #vitiligo and its effects.
Who fancies a Knickerbocker Glory?
This week I received an email from a #television production company here in the UK called Knickerbockerglory which is currently (summer 2016) in the process of producing a powerful documentary series aimed at challenging people’s #preconceptions about various topical social issues. One of the programmes in the series will look at facial differences using first-person testimony to explain the impact of this on people's lives. The company would like to include someone who has facial vitiligo in order to raise understanding and awareness about the skin condition and also expel the stigma and stereotyping that so often comes with it.
If you feel that you might be willing to take part but want reassurance that the programme would handle you and the subject matter sensitively I would encourage you to watch the first film in this series, My Name Is… and I’m An Alcoholic, which was screened in January for Channel 5 and received outstanding reviews from both viewers and the recovery community alike.
If you take a look at that programme (just click on the highlighted programme title link above) I am sure you will agree with me that this format offers an extremely insightful and effective way, not simply of educating viewers about what vitiligo is, but of helping them get "inside the skin" of the vitiligo sufferer and appreciate what it is like to deal with the condition on a daily basis.
So, if you have vitiligo on your face and would like to discuss the possibility of participating in this programme please email Suki on: email@example.com or call 0208 740 6300.
I know that it takes a tremendous amount of courage to do something like this but it is an amazing opportunity and I really think it will make a difference to how vitiligo is perceived and understood.
Don't forget World Vitiligo Day is June 25th
And what better time to do something proactive to raise awareness since next Saturday is World Vitiligo Day 2016? Whether or not TV appearances are for you, I hope you will find some way of getting the word out about vitiligo in your community or further afield. I, for one, am hoping that the requests so many of us sent in over the past few months to the #GoogleDoodle team to mark the day with one of their famous doodles will have paid off because the effects of this would be massive. But if not, we will certainly keep pushing for next year!
I am not known for my short blogs. This is partly because I am quite a long-winded person (my husband often pleads with me to get to the point!). But it is mainly because #vitiligo is a complex subject. I find that it leads me down such fascinating and winding paths that I'm sure I risk losing some readers who may just be looking for quick snippets of information (or who may just need to go and get a hair cut!!) If you fall into that latter category you will be pleased to know that this week I shall be brief because I want to reach as many people as possible with a very simple message and to ask you to play your part.
A couple of days ago I received an email from Ogo Maduewesi, Founder and CEO of VITSAF, with a brilliant idea for raising #awareness. She proposed that we ask Google to mark World Vitiligo Day by devoting one of their famous Google Doodles to mark the date on June 25. Needless to say, this would be an incredibly powerful way of getting the word “vitiligo” in front of a huge chunk of the world's population on one day. It would encourage people to look it up, think about it, become better informed and find out what World Vitiligo Day is all about. It would be massively influential in changing perceptions and could even lead to increased funding and research and a cure sooner instead of later. Not least, it would give people with vitiligo everywhere a huge sense of encouragement and solidarity.
I can think of no better way to spread awareness
Roughly 1 in 100 people – men, women and children of all races and backgrounds – will develop vitiligo during their lifetime and for many the experience is socially and psychologically devastating. I can think of no other phenomenon indiscriminately affecting this proportion of the world's population that is so poorly understood, so under-researched, so under-funded and so under-publicised. And I can think of no better way to spread awareness about it than by getting behind this #campaign.
The beauty of it is that we can all help by doing something that will take us no more than 5 minutes. If you would like to see a World Vitiligo Day Google Doodle on June 25 please:
send an email to Ryan Germick at firstname.lastname@example.org
send a letter to:
Doodle Team Lead
1600 Amphitheatre Pkwy
Mountain View, CA 94043, USA
It can be as brief as you like: for example “Please create a Google Doodle for World Vitiligo Day on June 25. It would help raise awareness of this little-known skin condition that affects so many people around the world.” Or you can make it more personal and add your own perspective if you have time. The main thing is for us to get as many requests sent in as possible so we stand a chance of success.
Judging by this video, someone already had this idea but it never came to fruition . So let's all put our voices together and actually do-odle it!
Please like this post if you intend to send a request :)
plus my thoughts on ducks, country walks, ships and ecosystems!
Yes - you read the title of this blog post correctly. Read on, and all will become clear :)
I am very fortunate where I live, in a rural part of northern England, to have some lovely country walks right on my doorstep. I have always enjoyed walking because I love fresh air and beautiful scenery. I am also acutely aware of how important it is to stay fit and active if you want to keep chronic conditions like vitiligo and arthritis under control. Both of these health problems plagued me for most of my life and I have always suspected they were linked in some way. I just don't think that it was a coincidence that my arthritis was at its worst during the years when my #vitiligo was spreading fast; neither was it a fluke that my joint pain and stiffness diminished massively when my skin re-pigmented.
After several years of digging into the subject, I have come to believe that genetics and poor digestion lie at the root of both of these conditions. Since there is not much I can do about my genes (at least not unless or until a genetic cure for such disorders is developed), I like to focus on making the best lifestyle choices I can to support my overall health, in the knowledge that the human body has immense capacity to heal itself, given half a chance – as I have found out from personal experience.
A #holistic practitioner once told me that anyone with long-term, compromised health is a bit like a cargo ship on the ocean: if it is well maintained and loaded correctly it will stay afloat; but if you let it rust or weigh it down too heavily, there comes a point where it will start to sink below the water line. Because of this, a person with chronic disease must take care not to weigh their body down with too many of the things that might overload it (like inflammatory foods, poor nutrition, too little sleep, smoking, too much alcohol, etc.) These pieces of cargo might not pose a risk to a person in normal health because their body is more buoyant and bounces back more easily. But for someone with an autoimmune, or other chronic condition, there is a much finer line between floating and sinking.
I haven't always thought of my body as an ecosystem. But ever since I regained my pigment (and simultaneously started to get the arthritis under control) as a result of taking nutritional supplements, it has seemed entirely logical to me that if replacing deficient nutrition was able to heal my skin, it might also improve bone and soft tissue health, arthritis and any other chronic condition at the same time. It has also made me more aware that keeping fit and active every day is bound help maintain healthy circulation, digestion, elimination, muscle tone, etc. which, in turn, is bound to bring about further improvements, lifting the human ship a little further above the water line.
Anyway – back to the walking, which I find such a pleasurable part of leading a healthy lifestyle… I was admiring the views from the top of a nearby hill a couple of days ago when I noticed two pairs of ducks waddling across a field a few yards away from me. The sight was quite comical because, for one thing, there was no water anywhere around (just grass as far as you could see) and, for another, the two drakes were walking side by side and the two females were sauntering along together too. It looked for all the world as if they were two neighbourly couples out for a leisurely stroll and a sociable chat with their opposite number.
Always fascinated by pigmentation in nature, I was struck by how very different the male and female ducks' colouring and markings were but how identical to each other the two males and the two females appeared to be. I'm sure the ducks themselves have no problem telling which partner is theirs but, to us humans, one species and gender of duck all look pretty much alike. Humans, on the other hand, come in all shapes, sizes and colours. On the whole, we relish this wide variety on offer when it comes to playing those initial stages of the mating game that so often rely on outward appearance. (Yes, some gentlemen really do prefer blondes and some girls really do fall for tall, dark and handsome guys.) Sometimes opposites do attract, but then again sometimes we seek a partner who shares our physical characteristics. “Vive la différence” has acquired a broader meaning over the generations since the 1960's when western cultures and fashions began celebrating greater individuality.
And yet, there is still a primitive instinct in most of us that makes us fearful of straying too far from what is considered to be “the norm”. It is that desire to blend in, not to be too different, so as not to risk rejection by the rest of the ducks in the pond. Many of us, at some time in our lives, find ourselves feeling like the Ugly Duckling. Whether we are unusually tall, have a prominent birthmark, a nose we hate or a skin disorder like vitiligo, acne or psoriasis, the whole prospect of socialising, can be fraught with feelings of insecurity and dread. And never more so than when dating or searching for a significant other.
Which finally brings me to the TV part of this post. I am contacted from time to time by programme makers who are looking for people with vitiligo to feature in various documentaries. If you live in the UK, are single, over 18 and would like to raise awareness of vitiligo by taking part in a #TV-programme, please get in touch direct with the programme makers using the contact details on the flyer below. (That's telephone number 0207 290 0233 or email@example.com.) The series will follow single people who feel that their love lives have been affected by a medical or physical condition and as a result may not feel entirely comfortable with being open about their condition when they first meet people.
Looking back on my own single days, I hid my vitiligo so well in my teens and twenties that most people never knew about it and I now realise I had no reason to feel so anxious about how it might affect my love life. When I met my husband, he was amazed that I should feel so insecure about something that, as far as he was concerned, had zero relevance to his feelings for me. He found me beautiful then, and throughout the 30 odd years since - while my vitiligo spread – he still found me beautiful. Interestingly, now that the white patches are virtually gone, his view of me is still exactly the same. It just goes to show that ugliness can be a state of mind, whereas beauty truly is in the eye of the beholder.
A chance to swap vitiligo tips on TV
I was contacted this week by a producer working on a new format for UK Channel 4 which is aiming to build confidence and give tips and advice to people with #facial-conditions. (This could be anything from adult #acne and #rosacea to #scarring from an accident or operation.) She is looking both for people who want advice, and those who have experienced an injury or condition and who have cosmetics and make up tips to share with others. If this is an opportunity that interests you, please read the information below and contact "Remarkable Television" direct on the email address provided.
.. that's VITILIGO reversed!
Having just returned from 2 weeks holiday in the sunshine (which, prior to my repigmentation, would have been an endurance test) I realise I had prepared this post before going and completely forgot to share it with you!
When I wrote it I was obviously still in festive mode, after playing various word games over the Christmas period, and came up with this acrostic message for all my #vitiligo-friends this January. It's a bit of fun, but sincerely meant :)
This year I am looking forward to continuing my own success at keeping my vitiligo at bay and to helping as many others as possible to achieve OGILITIV too!
I plan to add more well-researched vitiligo solutions to Vitiligo Store and look forward to corresponding with old friends and new, sharing tips and experiences and continuing to be part of the growing community of people around the world who are determined to make life better for everyone living with vitiligo.
... wherever you are in the world
Ever since starting my Vit Pro blog more than five years ago I have enjoyed connecting with #vitiligo-friends all over the world. Thanks to the internet and email, I have been privileged to witness, and participate in, the growth of an inspirational, supportive and compassionate global community of people who are taking their physical and emotional health into their own hands. These people are all affected in some way by vitiligo. In most cases, they have the condition themselves; in others they are concerned for a loved one. What unites them is a shared experience that approximately 99% of the population have never had to contend with: the experience of seeing parts of their skin change colour for no apparent reason and without warning. These are the only people who really know how deeply this particular alteration to a person's appearance can affect their self-image. They are the ones who really understand what it is like to be on the receiving end of other people's curiosity and misconceptions about a skin disorder, which is still so under-researched and under-publicised. It is this community (as opposed to the medical profession, who are so often dismissive of the “non life threatening” complaint ) who have developed coping strategies and even effective treatments for vitiligo and who are happy to share them with each other. They are the ones who are gradually bringing the proud, if patchy, face of vitiligo into the public perception with their posts and blogs and photos and videos and campaigning. Above all, it is this global #community of exceptional people (you are superheroes in my eyes) who freely give mutual support and strength on a daily basis and who, in many cases, are helping others to reclaim their sense of dignity, identity and positivity about their future.
So, to all vitiligo friends around the world, I want to thank you for the courage, wisdom, cheerfulness and hope you have shared with the rest of us over past years and wish you a happy 2016 filled with every blessing you wish for (and I especially wish you a happy New Year if yours is one of the many languages I did not quite have the space, or intelligence, to include in the list below :)
Afrikaans - Voorspoedige nuwe jaar
Arabic - Kul 'am wa antum bikhair
Basque - Urte Berri on
Bengali - Shuvo noboborsho
Chinese (Cantonese) - Sun nien fai lok
Chinese (Mandarin) - Xin nian yu kuai
Czech - Stastny Novy Rok
Danish - Godt NytÅr
Dutch - Gelukkig nieuwjaar
English - Happy New Year
Esperanto - Bonan Novjaron
Finnish - Onnellista uutta vuotta
French - Bonne année
German - Ein glückliches neues Jahr
Greek - Eutychismenos o kainourgios chronos
Hawaiian - Hauoli Makahiki hou
Hebrew - Shana Tova
Hungarian - Boldog uj evet
Indonesian (Bahasa) - Selamat Tahun Baru
Italian - Felice Anno Nuovo
Japanese - Akemashite Omedetou Gozaimasu
Korean - Sehe Bokmanee Bateuseyo
Laotian (Hmong) - Nyob Zoo Xyoo Tshiab
Nigerian (Hausa) - Barka da sabuwar shekara
Norwegian - Godt Nytt År
Philippines (Tagalog) - Manigong Bagong Taon
Polish - Szczesliwego Nowego Roku
Romanian - La Multi Ani si Un An Nou Fericit
Russian - S novim godom
Samoan - Ia manuia le Tausaga Fou
Spanish - Feliz año nuevo
Swahili - Heri za Mwaka Mpya
Swedish - Gott Nytt År
Thai - Sawatdee Pi Mai
Vietnamese - Chuc mung nam moi
Welsh - Blwyddyn Newydd Dda
And how I have my skin to thank for my internet addiction!
Hardly a day goes by that I don't marvel at the way the internet has changed daily life for most people on the planet. It's hard to believe that it has only been two and a half decades since the World Wide Web (doesn't that sound quaint now?!) was invented. I'm sure I'm not the only one who struggles to remember a time when there was no such thing as going online, emailing, messaging, social media, internet shopping, mobile apps and, above all, endless googling on every topic under the sun. (Mind you, as a post menopausal woman, I struggle to remember lots of things!) I wouldn't mind betting that the majority of us would find it difficult to say which would be more inconvenient: an interruption to our water supply or to our internet provision! It seems that access to instant information “on tap” has, literally, become as essential to life as water.
I have noticed, though, that a lot of my contemporaries spend much less time online than I do (a few even choosing not to take part in the internet revolution at all, feeling that it all happened slightly too late for them). I suppose I have my #vitiligo to thank for being more internet savvy than most of my peers. Having grown up and lived almost half a century with little or no access to helpful information on my poorly-understood, never-talked-about, incurable and largely ignored skin condition called vitiligo, the advent of the internet was like finding Aladdin's Cave. Suddenly, I could ask any question I liked about it and get a whole bunch of answers in less time than it takes to say “there's no cure – go home and live with it”. This was wonderful, it IS wonderful – and it is getting better all the time as good advice, clinical research and social media support all become more accessible.
However, the availability of massive quantities of information about vitiligo comes with a downside – and the downside is: massive amounts of information about vitiligo. There are now such vast quantities of the stuff out there that it can be a tedious and time-consuming task finding exactly the right search terms and sifting through the mountains of results; and then it is not always easy to separate the reliable from the misleading or misinformed. For the past 6 years or so I have spent a tremendous amount of time researching everything I can find on the subject and I sometimes feel that the task is not too far removed from that of the international intelligence services, trying to keep ahead of the global terrorist threat: swamped with data and hard-pressed to distinguish what is relevant from what isn't. Having said all of that, I'm not complaining: I love researching - I admit I am addicted to it - and I love sharing what I find. But I still sometimes find myself thinking how much easier it would be for someone who is newly diagnosed with vitiligo to have a real, live person sitting next to them who has first-hand experience of having the condition and who would be willing just to talk through it.
This is the general approach I tried to adopt myself when I was asked earlier this year to write a #Vitiligo-Guide for Mind and Skin (an excellent charity I first came across a year ago) to offer some straightforward #advice to anyone who might be looking for guidance from someone who has been through what they are going through. I tried to include all the basic information I would have liked to have when I was first diagnosed but I also wanted to keep everything as simple as possible. The Guide covers the following points:
You can find the full text here but, in case you don't want to read the whole thing, I have copied the 10 #tips portion below and inserted some additional links that may provide useful further browsing ...
A vitiligo blogger since 2011. My name is Caroline. I had vitiligo for nearly 50 years before finding an effective treatment. I created this blog to share my experiences with others affected by this skin condition.