We are used to hearing that we need to eat more fruit and veg but, if what I read on the subject of #vitiligo (and good health generally) is true, we should avoid all sugar as much as possible - including fructose - which means reducing fruit intake and focussing on veggies instead. So, with vitiligo in mind, maybe blackberries really don't work!!
... never, never ... never give in!
For years I had no real expectation of regaining my skin colour because I had been told by the medical establishment that there was no cure and had been led to believe that my lost pigment was just that - lost for ever. I now know something that should give every vitiilgo sufferer hope. I know from personal experience that the pigment in vitiligo patches is not lost - just dormant. So, if you are feeling depressed about your white patches, take heart and keep looking for the answer for you (which may or may not be the same as it was for me) and keep your hopes alive! It's always much too soon to give up :)
I was wondering what the collective noun for a group of vitiligo sufferers would be... would we be called a lesion?!!
Given that a key ingredient in Boost (one of the supplements that has helped me to re-pigment most of my vitiigo patches over the past couple of years) is copper, I was very interested to read recently that drinking water that has been stored in copper containers is a tried and tested "home remedy" for vitiligo. Apparently the copper ions that are absorbed in the water are found to stimulate melanin, thus increasing your chances of getting rid of vitiligo patches on your skin :)
Those of us with vitiligo, or other non-fatal conditions with no known cure, are only too familiar with the dismissive reaction that is the standard response of so many in the mainstream medical profession. "Go away and live with it" we are told. Others, even less fortunate than oursleves, who actually do have life-threatening diseases like cancer are told that their only hope of survival is to submit to toxic chemical and radiation treatments. What they are almost never told is that if the cancer does not kill them the treatment will almost certainly shorten, or even end, their life. And what we are never, ever told by the established western medical fraternity is that nutritional therapy can offer us a safe and more effective alternative - not to mention a superior quality of life after we are cured. And why are we never told this? Probably because the average medical student receives no more than half a day's input on the subject of nutrition in their entire education... and certainly because the whole of the medical establishment in the western world is both funded and regulated by the mammoth drug companies, in whose interests it is to keep us sick and coming back for more of their chemicals and toxins. If I sound cynical, it's because I am! I don't dispute that drugs and surgery are essential options in many cases. But how did we ever arrive at this crazy state of affairs where they are regarded as the holy trinity? How did western medicine ever stray so far from its hippoccratic roots and totally deny its fundamental principles that we are what we eat and that nutrition should be the first therapeutic resort? If you are in any doubt that Hipppoccrates was bang on when he said "Let thy food be thy medicine and thy medicine be thy food" take a look at this movie entitled "Food Matters" .
It seems that vitamin D is the most talked about vitamin in the media at the moment. (See article in the Daily Mail on recent research highlighting the need for supplementation in a much larger proportion of the population than previously thought - especially for those with pale skins.)
In addition to the health concerns discussed in this article, the literature on vitiligo also suggests that the potential to develop the condition - and other autoimmune disorders - increases with vitamin D deficiency. Therefore symptoms and the prognosis of vitiligo could be significantly improved by maintaining the adequate levels of this vitamin.
To ensure adequate level of vitamin D for normal health the average person must absorb 5,000 international units (IU) of vitamin D per day for 2–3 months. The newest vitamin D supplement to reach the market has just been launched by the same suppliers as the other supplements I have used to treat my vitiligo and is exactly that dosage. It is recommended by Professor Greg Whyte, so I shall definitely be adding it to my regimen. (If anyone else would like to try it, it can be ordered here and a 15% discount for vitiligo sufferers is available by quoting discount code VITPR01.)
For years, longing long years
I mourned my smooth, young honey-hued, freckle-filled summers.
My tears, pander-eyed tears
Trickled down the furtive, long-sleeved, camouflaged decades.
I hoped hopeless hopes
That the pallid,white-lashed jig-saw stranger in the mirror should leave.
My fears, shadowy fears
Multiplied, forming stark splashes across the carefree canvas of my psyche.
Resigned, and re-designed
The pattern of my life became cheery-faced denial-by-self-tan.
And there, just where despair
Had me in its mottled, stubborn, white-knuckled, piebald grip
The long, long, longed-for thing
Occurred – showering my bleached body and soul with golden shards of joy.
The white, bright white
Which blighted my confidence and leached the tones from my being
Is going, going, gone
And I am once again becoming who I always so secretly and subcutaneously was.
I’m me… I’m free
And blissfully, gratefully, ecstatically aware that the final letters of my life’s curse are…
© Vitiligoprotocol 2011
A vitiligo blogger since 2011. My name is Caroline. I had vitiligo for nearly 50 years before finding an effective treatment. I created this blog to share my experiences with others affected by this skin condition.